Monday, May 16, 2016

The Captain went sailing today!

Jonah is being so very well cared for in his new unit at DRMC. After a rocky start, we have felt embraced and heard. Jonah has the best of the best in staff and care. What a tremendous blessing! 
The day started out with Jo's Physical Therapy Doctor (He's called something other than that, but it is a fancy name and I'll be danged if I can remember the title) in to examine Jo's progress. His nurse Tala and I were so excited to share all of the miraculous things Jo had done the the last 24 hours. We named off his thumbs up, his trying to touch me and hug me, him trying to say "I love you", his touching his nose, his pointing to each person named in the room correctly, pucker his lips to kiss, & turn his head to say no. He was unimpressed and then showed me how Jonah's brain injury has caused him to regain to reflexes that infants are born with - and he has not seen that very often - and this is not good! He then showed me how to force Jonah's foot forward towards his knee and out until his foot stop skittering and pulsing! He says that this is happening because Jonah's brain is not sending back the correct response to his feet. He told me to do this several times a day! The other reflex showed when he flicked the tip of Jo's middle finger and his thumb jumped. He told me that he didn't feel that Jo was in the 4th level yet and he didn't know when he would. I asked him if he ever saw anyone not pass through level 4. He told me that he has only seen that 2 times. Even as I was asking, I already knew what I was going to expect from Jonah's experience, he would not have a difficult time with this stage, as described by this doctor, because we will reassure him and pray to understand him and have the ability to comfort him. 
Jo has become pretty consistent in being able to communicate with us with hand squeezes, poking out his tongue and thumbs up or down, even though he isn't with the doctors. We have filmed him many times. My goal today was to get the permission granted that we could take him outside. Our sweet nurse,Tala, got right on it and within a few minutes of the arrival of the  physical therapists we had the okay. They got Jo secured I his chair and off the parade of Tuttle family and Tala went through the halls and secret passages of the hospital i
donning our plastic smocks, gloves and masks. All we needed was balloons and confetti and maybe a band. We were terrible at be quiet and careful to not over stimulate Jo! Everyone was curiously trying to be inconspicuous about trying to see what was going on. Once outside near the beautiful and tranquil sound of the water feature of the hospital garden, Jonah really woke up. Jonah was able to clap his hands, do a double "hang loose" sign using both hands at the same time, tell us he was being hurt by the seat belt holding him in the chair, he touched and rubbed Deegan's hand and patted Zach's new baby and the feet of Leo. He so obviously tried to say "cheese" with us when we took our pictures. He was able to identify his correct birthdate and understand when someone speaks to him in Spanish. He told us he wanted to stay outside and then when he was ready to go back in. He told us he understands what happened to him and where he is. We explained that the cervical collar and helmet were not permanent and he would be able to be without them in time. We asked him if he was ready to come home and he squeezed Tom's hand really tight for "Yes" and then Tom told him he had to walk first and Jonah started moving his legs and tried to get his seat belt off to show he was ready to try. After getting Jo back to bed to rest for a bit, the speech therapists came in and he was able to suck Root Beer from a straw and said he wanted more. They put the piece in his trach that allows him to talk and he tried to say "mom" and "more". I am very excited and thrilled with Jo's huge progress in this short 24 hours. So far the only people not on board with the excitement is his doctors because he doesn't show them what he shows us. The reason he remains stuck in level three is because his movements must be consistent and precise with the command and done immediately without a pause! We are just thrilled with what we are seeing and so happy that we are better able to communicate with him about his wants and needs. We are so thankful for the open communication lines that the new unit has opened for us between them and us and for the tremendous care these past two days. This helps me feel less panic over Jo's needs being met!! The Lord's has got this! He is in control!! I LOVE my boy!! #justwakeupjonah

10 comments:

  1. Good news about Jo's progress. I was really concerned yesterday when I read your post. God is doing great things for Jonah. Love and prayers, Judy.

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  2. I am so happy to hear about his progress!! He is a stubborn amazing young man, there is no doubt that he will hit stage 4 sooner than later!! Please tell him that Rachel is there with him in spirit....love ya Buddy!!❤️

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  3. Whoa that is some serious communicating whuu huuuu keep it up Jonah good job!!! Understanding Spanish?? Nice! I can't even do that!! 👍 love, Catherine

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  4. And so glad to hear things are working out better in the new place. L,cat

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    1. sorry i seem to duplicate my posts so i delete the extras ;)

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  7. I'm so happy to hear all of your wonderful news. We continue to pray for Jonah.

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  8. What a wonderful day!

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  9. This just warms my heart to hear this great news. The Lord is taking great care of Jonah.

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