Sunday, May 1, 2016

April 30, 2016

April 30, 2016

Jonah had beautiful vital stats this morning . His neurosurgeon was pleased with his ICPs through the night. The ICPs have been in the normal range (0-8) for the past 24 hours. He was talking about removing Jonah's bolt tomorrow. He has gone from 100% use of oxygen the night before last, to 40% last night, to breathing with little to no assistance from the ventilator this afternoon. His digestive track is still not awake and digesting the tube feed formula at an adequate rate. They come in suck the contents of his stomach out every 4 hours to measure to see if he is digesting the contents or it's just building up. He has not passed this test very well yet and they have had to turn his tube feed off for several hours at a time to allow his body to "catch up". I was invited to lie next to him this afternoon. I love to hold his hand and listen to the rhythm of his breathing.  Surprisingly, it is incredibly peaceful to listen to the quiet rhythmic purr of the ventilator and IV pumps administering their various helps and products. Then about 3 PM, just as his DSU Rugby team was taking the field at DSU Hansen Stadium to play the Rocky Mountain Division 2 Championship rugby game against UVU, he spiked a fever. Again, he was packed in ice and wet wash clothes as the box fan blew icy wind over his body. A mouth guard, which resembles a mini white chocolate popsicle was placed in his mouth to keep him from biting his tongue. (He had a big sore on the end of his tongue from biting it). He was responding to pain today and even moving his face and mouth without direct stimulation early in the day. 
I didn't want to leave Jo to go to the championship game. His team won their championship game 26-24! Coach Moffitt stated some very interesting stats that have great meaning to his teammates: There were 2 fumbles by the opponents which resulted in DSU scoring. There were 2 missed field goal kicks by the opposing team. AND DSU won by 2 points!!! What's Jonah's number???? "2"!!!!! The team felt that Jonah was there and was represented. All said it was Jonah that blew the ball off course as it sailed through the air on target for the field goal. The crowd ROARED, "JONAH!!!, JONAH!!!, JONAH!!!" with each goal made. There have never been as many attendees at a DSU football game as there were at these last two rugby games!!!!! The unification and enthusiasm was felt by all. Everyone returned to the hospital with horse voices due to their cheerleading from the the bleachers. This was a dream come true for Jonah! He has worked hard this past year to get the team organized and on DSU's sports radar!!! He recruited players, he was the liaison between the team and the school and advocate for the team. He loves each player and coach!!! After the game the coaches and team came to the hospital to give Jonah the championship trophy and his metal. His blood pressure shot up and everyone was asked to leave to see if it would resolve on its own. It did and no meds were required. This was another huge milestone!!!! It is now 10:30pm and Jonah is still covered in ice and wet wash clothes, icy air from his fan. Tom and I are bundled up in several blankets, coats and fur boots, sitting in his room😬His ICP is a very low "3"! He is mostly breathing on his own. He has no racing heart or rapid breathing.... it is a calm and steady rhythm!!! His nurse is giving him some pain meds to see if this will bring his blood pressure down.

In the Book of Mormon, in the book of Enos 1:12 it states: "And it came to pass after I had prayed and labored with all diligence, the Lord said unto me: I will grant unto thee according to thy desires, because of thy faith." What a blessing to know that we are not alone and there is someone, greater than all, in control!! Our family is blessed! 
-Heather Tuttle

3 comments:

  1. You and your family amaze me Heather. I felt blessed to be in all your presence, you can feel the Spirit residing with everyone. I didn't want to leave. Thank you so much for your update. We continue to pray and fast for Jonah.

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  2. You and your family amaze me Heather. I felt blessed to be in all your presence, you can feel the Spirit residing with everyone. I didn't want to leave. Thank you so much for your update. We continue to pray and fast for Jonah.

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  3. I love everything about this post! I think everyone felt him at the game yesterday there was no question those dark skies with that opening in the cloud..everything about that game was Jonah

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